The Canadian Alliance for Healthy Hearts and Minds (CAHHM) – First Nations cohort researchers participated in a three-day workshop designed to build capacity in data management and analysis, as well as encourage self-determination in research for Indigenous community partners.
Fifty participants, roughly half of whom were Indigenous, attended All About Us: Principles and Approaches to Statistical Analysis with Indigenous Storytelling” May 15-17, 2019 at the Hamilton, Ontario offices of PHRI and a nearby hotel. Professor Sonia Anand, lead investigator of CAHHM-FN, kicked off the workshop with an overview of the Alliance study.
Opening keynote speakers, Dr. Nadine Caron (University of British Columbia) , Canada’s first general-surgeon of First Nations descent, and Maui Hudson, of New Zealand’s University of Waikato and a member of the Maori Data Sovereignty Network, presented on the importance of biobanking to Indigenous people and the “genomic divide between haves and have-nots.” They later co-presented on the Genome Canada-funded Silent Genomes Project, with project lead Dr. Laura Arbour, University of Victoria.
Workshop sessions co-led by PHRI’s Director of Statistics, Dr. Shrikant Bangdiwala and Dr. Diana Lewis, faculty, FN studies at Western University, covered statistical literacy, hands-on data analysis, data security (presented by Dan Trottier), Indigenous genomics research and biobanking, and other topics in Indigenous health research.
The event ended with a keynote address by Dr. Bernice Downey, Indigenous health lead at McMaster’s school of nursing, and a member of the McMaster’s Department of psychiatry and behavioural neurosciences, speaking about her work in women’s heart health research alongside several First Nations communities across Canada. Her talk was followed by an evening of Indigenous entertainment and Healthy Roots dinner on Six Nations of Grand River, home to the Six Nations Health Foundation – a sponsor of the workshop.
(There was much tweeting during the three=day event; you can look up that content easily on Twitter by using the hashtag #Indigenousdata.)
Thanks to all who made our #IndigenousData workshop @PHRIresearch a success led by @DrSoniaAnand1, Dr. Shrikant Bangdiwala, @Dee_Lewis_NS + colleagues from #Gitxsan, #Maskwacis, @FortMcKay, #LaRonge, @Oneida_Nation41, @SixNationsEC, @NhwWendake, & #PictouLanding. pic.twitter.com/CCvpZkJzWg
— Dr. Russell de Souza, RD, ScD (@DrRussRD) May 18, 2019